NAQC Minimal Data Set – Plan for Full Review
Tuesday, October 18, 2016
Posted by: Natalia Gromov
Dear NAQC Members,
The Minimal Data Set (MDS) was first completed in mid-2005 and was adopted by all quitlines in the U.S. and Canada by early 2006. It includes REQUIRED and OPTIONAL questions, and provides an important benefit of standardized questions for evaluating quitlines. A major strength of the MDS is its ability to evolve over time to reflect new topics and issues of importance to both the quitline and research communities. It is noteworthy that CDC’s National Quitline Data Warehouse includes many MDS questions.
Over the past ten years, changes to the MDS have been spearheaded by NAQC members as well as NAQC staff. The most recent additions include REQUIRED and OPTIONAL questions on electronic nicotine delivery systems (ENDS) and OPTIONAL questions on LGBT Identity.
NAQC has received feedback from members that since the creation of the MDS in 2005, the amount of time needed at intake to register a tobacco user for quitline services has increased. In addition, there are questions from members about whether or not all measures on the MDS remain relevant to the quitline community.
To help determine the direction of the MDS, NAQC is planning to conduct a full review over the next year. The goal of the MDS Full Review is to ensure the measures used are supported by current academic literature and/or quitline community best practice, and meet the essential data needs of the quitline community.
The full review of the MDS will begin in November 2016 and conclude in August 2017. The process will include:
- 1:1 discussions with select quitline professionals;
- Gathering and reviewing intake and follow-up instruments used by state, provincial and territorial quitlines;
- Convening a workgroup of NAQC members to review the MDS intake and follow-up instruments and make recommendations for changes; and
- Gathering NAQC member feedback via email and during the NAQC Conference on March 20/21 during a breakout session on the MDS Full Review;
To help plan for the MDS Full Review, I ask members to consider the following questions and submit any feedback you may have to me via email at email@example.com. Feedback on these questions, or on the MDS Full Review, are welcome at any time during the process.
1. What operational issues with intake and follow-up should be taken into consideration during the MDS Full Review?
2. From your perspective, what is the value of having standardized questions for the quitline community to use at intake and follow-up?
3. Are there specific intake or follow-up questions on the MDS that you recommend we take action on (i.e., add, delete, revise) during the MDS Full Review?
Thank you in advance for your feedback and participation in the MDS Full Review. If you have any questions or concerns about the MDS Full Review please contact me at any time.
Maria Rudie, MPH
North American Quitline Consortium
Ph: 800.398.5489 ext. 704